Update October 2015

We've been living overseas since about the time this blog petered out. There are lots of funny Mo-and-Curly-abroad stories to share -- I'm exploring the best way to do that.

Thanks for tuning in!

Thursday, December 23, 2010

Mo's thoughts on Santa

We went out for pancakes the other day, and Santa stopped by our table to say, "Hello."

Mo surprised him with a pointed question: "How do you get in people's houses if they don't have a fireplace?"

Santa's face lit up. Clearly prepared for this question, he pulled out an old fashioned, ornate key. He explained, "For houses that don't have fireplaces, I have a magic key. It looks like a normal key right now, but on Christmas Eve it glows and sparkles and opens any door."

Mo nodded but didn't say anything more.

Today in the car, Mo says to me: "Mom, I'm really glad was have a fireplace. I don't like the idea of someone just walking into our house like that. Even if it's Santa."

Monday, December 20, 2010

Trouble in a cute package

Curly's super-cute these days, but boy is he a lot of trouble.

Just yesterday:

  • He picked up my coffee cup and emptied its contents on the floor.
  • He refused to put on his coat, hat, gloves, socks or shoes. He also wore his jammie shirt all day long.
  • I put my dinner on the kitchen table and ran back to grab the Parmesan cheese. Curly took that opportunity to dump my entire glass of water over my spaghetti dinner.
  • He broke the power cord on my laptop.
  • When I ran upstairs to talk about Christmas gifts with my mom (didn't want the boys to overhear), Curly pulled a kitchen chair up to my spice cupboard and sprinkled stuff all over the counters and floor - including an entire jar of basil.

I just keep reminding myself that Mo used to be like this, too, and I know that little Curly will grow out of it eventually.

Friday, December 17, 2010

The Christmas countdown ends here

This morning.



Mo: Can I get my chocolate for the day?

Me (in bathroom): Can you find number 17?

Mo: It's a one and a seven, right?

Me: Yes, that's right.

Mo: I can find it.

Me: Ok then.



I come downstairs to find this... apparently he not only found number 17, but every other remaining number on his advent calender that still had a chocolate behind it. I should have known better.


Thursday, December 9, 2010

Another tale of destruction

So, you've heard about the peanut butter painting, the raisin road and the warped bamboo floors.

The destruction continues.

Curly recently shoved a pirate coin in the Wii. Mo pulled it out with his little fingers, but the Wii still doesn't work. So we're assuming there's something else stuck in there.

Dad tried disassembling it but it looks like he'll need a special tool. Apparently it's much harder to take apart a Wii than a VCR.

And of course, Wii games are part of the plan for Christmas presents in a couple weeks.

Any ideas out there? Could something like the Geek Squad help us out, or is our only option to buy another Wii (ouch!)?

Friday, December 3, 2010

Calling all my Hirschsprung peeps

I know a lot of my readers are connected with the Hirschsprung community.

And what do all of us HD people want?

Better information and improved diagnosis and treatment.

To make that happen, there needs to be more research. And guess what? There's some happening right now at John Hopkins. And they need more participants.

So please check it out. All you need to do is sign a release form so they can access medical records and submit a blood or saliva sample. They'll send you a kit and walk you through the process. Easy, peasy, as Mo would say.

We all know how rare this disease is. Have you ever met another Hirschsprung patient or parent? I haven't -- not in person. So you can understand their challenge in trying to find us for research purposes.

Here's how to get involved.

Here's an interesting overview.

I signed up yesterday, and they're sending our kit Monday. I'll keep you posted.